Representatives of the association ACTION QUADS, along with representatives from the Rock Barcelonista of Totana and representatives of the Association for Rare Diseases and TGD of Totana "D'Genes have presented the poster on the route to the Sierra de Marķa in the province Almeria which this year commemorates the First World Day for Rare Diseases on February 28, 2009.
As volunteers and for the second consecutive year this route is organized and will serve to establish a first meeting point for the collection of signatures and joined the Global Compact for Rare Diseases.
As well as a space for coexistence between family members, patients and representatives of associations of the event organizers.
The route will take place on the morning of Sunday January 25, 2009 and will start in Totana and finish in the natural park of Sierra Maria - Los Velez.
Schedules to consider:
Quads & Logistics 8:30 am in the morning.
Plaza de la Constitution.
10:00 am Relatives and associates
each in his own vehicle.
Plaza de la Constitution.
A noon meal will be made of brotherhood in the Sierra de Marķa.
