The UCAM had moved to D'Genes Rare Disease Association and the Association of Family and Affected by Lipodystrophies (AELIP) its willingness to collaborate with the center by contributing part of the proceeds of the match will face on Sunday, 28 September, the Catholic University of Murcia CF with Cádiz CF at 18:00 pm on the stadium's Condomina city of Murcia.
Thus, the UCAM CF donate part of the box office this meeting the Multidisciplinary Center "Celia Pérez Carrión de Tudela", while the rest will go to the National ALS Association.
In addition, the club will install a series of money boxes at the entrances and in the stadium for both subscribers, who can enter for free, and the public in general, may also contribute to this good cause with the voluntary contribution considered appropriate.
Tickets, which have a single price of 5 euros, and can be purchased at the UCAM Sports Center, and from two hours before the game, in the ticket offices of the Condomina.
These solidarity actions were presented at a press conference held this morning in La Condomina, which was attended by the president of the UCAM, José Luis Mendoza;
Coordinator of the Unit of Medical Genetics, Hospital Virgen de la Arrixaca and researcher at the Catholic University of Murcia, Encarna Guillén;
Genes D'president, Juan Carrión;
and Professor and researcher at Paya UCAM Jacinto Javier Martínez.
In addition, a large group of players of the first team of the Catholic University of Murcia CF have wrapped the act.
From D'Genes and AELIP want to express its gratitude to both the UCAM as its president, José Luis Mendoza, for their sensitivity to the reality of rare diseases.
In this regard, President of D'Genes, Juan Carrion, expressed his gratitude and that this financial contribution will go towards maintenance of the center and the programs and activities that take place inside, and that at present benefit more than one hundred people with rare diseases in the Region.
The Multidisciplinary Center "Celia Carrion Perez de Tudela" located in Totana, was inaugurated on February 27 this year and he serves over 102 people with 75 rare diseases, both children and adults, who come from different points of the Region.
One of the objectives is precisely to enable the decentralization of services provided, locating offices in Murcia and Cartagena to avoid displacement of users in those areas.
In this infrastructure a broad portfolio of services offered to its users, which include the information and guidance on rare diseases, physiotherapy, psychology, hydrotherapy, speech therapy, cognitive stimulation, reflexology, social care, reiki, legal advice online , on-line counseling and respite services.
It lacks public funding and is funded entirely from fees paid partners AELIP D'Genes and thanks to the activities of organized jointly and parents of both associations, as well as other charitable initiatives from different entities and develop partnerships.
