| To address different issues that affect the entity in this municipality | The president of D´Genes, Juan Carrión Tudela, has recently met with the mayor of Totana, Juan José Cánovas, in order to address different issues that affect the entity in this municipality.Carrión conveyed to the first mayor the difficulties that the association is going through due to COVID 19 in order to continue guaranteeing and providing services to users, not only in the "Celia Carrón Pérez de Tudela" Center, but also in the other three the association has in Murcia, Lorca and the Sevillian municipality of El Coronil.The president of D´Genes conveyed to him the association's work plan for 2021 and in this sense he sent him the need to establish the signing of a collaboration agreement with the City Council to help maintain the Multidisciplinary Center "Celia Carrión Pérez de Tudela ", a center that currently serves 47 users who are receiving a total of 88 sessions per week of services such as speech therapy, cognitive stimulation, reflexology, psychological care or physiotherapy.
In addition, the Information and Guidance Service on rare diseases cares for people who contact the association from different parts of Spain and even abroad to make inquiries related to different pathologies.Carrión recalled that said infrastructure located in Totana and managed by the association is also an approved early care center and valued that it has been, since its opening in 2014, a benchmark in the care of people and families with rare diseases that serves users of this municipality and its surroundings.
.In another order of things, the first mayor has promised to accelerate the actions that allow the conditioning of the Child Care Center (CAI) located in the "El Saladar" industrial estate, whose transfer to D'Genes for its use is agreed by the Totanera Municipal Corporation in the course of a plenary session held last year.The president of D'Genes thanked the mayor for the sensitivity that the Totanero Consistory has always shown with the association and the group of people who live with rare diseases.
