The Minister for Health and Social Policy welcomes the event organizers, the Association for Rare Diseases in the Region of Murcia D'GENES
The Ministry of Health and Social Policy has recognized the 'Health Scientific Interest' of V Rare Diseases National Congress to be held in the Region of Murcia, according moved the head of this department, María Ãngeles Palacios, event organizers , Regional Association for Rare Disorders, D'GENES, with whom he has maintained a working meeting.
The meeting was attended by the Minister President of the Spanish Federation for Rare Diseases (ERDF), Juan Carrión, president of D'GENES, Naca Eulalia Pérez de Tudela, and the head of the Medical Genetics Unit of the Pediatric Department of Hospital Universitario Virgen de la Arrixaca, Encarna Guillen.
The Congress will be held in Totana, from 26 to 28 October, as part of the V Meeting of Families, Professionals and rare diseases and Moebius Syndrome Family Meeting 2012, and will be opened by the Minister of Health, Social Services and Equality, Ana Mato.
In the meeting with the leaders of 'D'Genes', presented to the minister who will participate in the Congress national and international experts in the field, but stressed the cooperation of the Region of Murcia, as the Chief of Hematology Hospital Virgen de La Arrixaca, Dr. Manuel Moreno, Matthew Gines or nurse, the pediatric home care unit of The Arrixaca also, that will offer presentations paths.
In addition, experts from the University of Murcia (UMU) have also joined the meeting, such as the professor of the Faculty of Psychology, Julio Perez, who will speak on 'Rare and Early Syndromes' and the director of the Chair Corporate Social Responsibility of the UMU, Longinus Marín, that address rare diseases from action and social responsibility.
President Danish Haemophilia Society, Terkel Andersen, the neurologists of the Hospital Sant Joan de Deu de Barcelona, ​​Mercedes Serrano, and Guy de Chauliac University Hospital of Montpellier, Renée Cheminal, molecular geneticist and Biological Research Center of the Superior Council Scientific, Luisa Botella, are other specialists who participate in this Congress, which also will be offered the testimonies of families affected by any of the diseases considered rare.
