The president of the Association for Rare Disorders Totana "D" GENES "Naca Pérez de Tudela, presented the Festival of Dance Miralles Loles be held on Friday September 26th at nine pm in the Performing Arts Hall of the town and whose proceeds will go to projects and services to be offered from this entity.
The presentation ceremony of the festival of solidarity, which was held at the premises of the Department of Citizen Participation, was attended by the director of the School of Dance, Loles Miralles, and members of the board of the association, who encouraged and invited the general public to attend the staging of the various performances that take place the students in this school.
This activity is part of awareness raising activities developed from the partnership, which aims to "create spaces for communication and exchange among family members and parents of children with rare diseases or severe developmental disorders and raising awareness of the public health problem posed by these diseases ".
Tickets for the charity festival will go on sale to the symbolic price of 5 euros (front row), and can be purchased at the box office the day of the theatrical representation from eight in the evening or through the direct sale members of "D'Genes' or students of the School of Dance Loles Miralles.
Attendees will enjoy the different staging musical performances over an hour and a half and during the whole performance is also provide bar-cafeteria, with food and drink for attendees, and whose benefits will also for the association.
The president of "D'Genes" appreciated the invaluable assistance of Loles Miralles, to contribute selflessly to the association and stressed the importance of "joining forces to search for resources that have an impact on improving the quality of life and care for those affected and family. "
Also encouraged all citizens to participate in this event, underscoring the sensitivity shown in the past through the town of Totana, with such acts.
Proceeds will go to the implementation of different services "D'Genes" intends to launch as physiotherapy, speech therapy, hydrotherapy and rehabilitation, among others, and to search for resources that have an impact on improving quality of life and care of patients and their families.
For his part, welcomed Miralles Loles staff to collaborate and contribute "a little bit" to improve the quality of life of these people.
Finally, members of the Board appreciated the work of "altruistic volunteers play in the association, whose work, effort and dedication," make life easier for these people. "
