Over fifty of hemophiliacs in Spain participated in the XIX edition of the Youth Training Days and Hemophilia, a summer camp that has been developed at the Center for Continuing Education Day and "The Pond" in Totana, and which has been organized over the years by the Spanish Federation of Hemophilia and the Hemophilia Association of Murcia.
In this camp, participants learn about their disease and treat it personally.
The closing ceremony of this conference was attended by the Mayor of Totana, José Martínez Andreo, who was accompanied by the councilman of Youth, Maria Josefa Sanchez, and Health, Trini Cayuela.
Also, the event was attended by the director general of Health, Francisco José García Ruiz, president of the Spanish Federation of Hemophilia, Vaño Luis Gisbert, President of FAMDIF, Carmen Gil, the president of the Regional Association of Hemophilia real Victoria Eugenia Foundation, Manuel Moreno, and the secretary general of the Spanish Federation of Hemophilia, José Antonio Muñoz Puche.
This camp, targeting children and young people aged between 8 and 12 years, has evolved from 14 to 25 July at the Center for Continuing Education Day and the pond, where participants received medical lectures, rehabilitation and physiotherapy, and psychological help to strengthen self-esteem of young people and to know in detail what is hemophilia and learn the techniques of self-treatment of this disease
These children also participated in cultural activities, leisure and sports within the available range for this holiday, which also include visits to places of interest in the Region of Murcia and the recent visit to the Regional Assembly .
The camp, which involved a total of 51 children from different parts of Spain, was launched on 16 July, and during these days, young people, accompanied by twelve instructors and health professionals, learn about their disease and techniques self-treatment, as most are in prophylactic treatment.
During the closing ceremony, officials set aside a few words to the children involved and proceeded to the delivery of a diploma and a shirt donated by the Youth Council.