Persons and entities that will be recognized with the Award of the Association of Rare Diseases are already known D'Genes 2015. The awards will be presented during the Gala Dinner to be held D'Genes in Rat Restaurant Sale Totana next February 7 at 21:00 pm in the framework of the activities organized to mark the World Day for Rare Diseases and which cites partners, users, professionals and friends of the association will be given.
This past December, the board of D'Genes discussed and issued its ruling on the D'Genes 2015 Awards, which recognize the joint trajectory and struggling people, institutions and companies that allow visible reality of low-prevalence diseases and that support and give strength to those affected to continue daily.
Winners
In this edition, we have established twelve categories for these awards will be presented during the commemoration of World Rare Disease Day.
Awarded ratio is:
路 Individual or medical service: Cesar Salcedo your medical history linked to rare diseases and their involvement in the dissemination and training activities of the association.
路 Public Institution: Universidad Cat髄ica San Antonio de Murcia - UCAM.
For their support and interest shown towards the organization to improve the quality of life for people with rare diseases and being active agents of the dissemination and awareness activities.
In recent years, the university has participated with the group of rare disorders through sporting activities, fairs, volunteering, etc.
路 Corporate Sponsor: Antonio Ca駃zares.
Since the beginning of the D'Genes association, the company has worked in various activities by way of donations in kind and has shown its unconditional support for people with rare diseases.
路 Social Work: Sports Association Singla.
For the organization and development of the March MTB for Rare Diseases has become an activity of the World Day in the region of Murcia northwest, and this year the Third Edition
路 Solidarity embodies Ponce for his selfless, altruistic and professional collaboration in the preparation of solidarity calendar 2015 D'Genes.
路 Professional Solidario: Salva L髉ez.
Their professionalism has accompanied us through his career in the media, making visible the issue of collective affected by rare diseases and also has worked as a presenter of several events of D'Genes.
路 Volunteering and social development: Donate Ondo駉 Pascual, coordinator of D'Genes in the Northwest Region.
Altruistic person who selflessly contributed to the diffusion and dissemination of Rare Diseases and Services D'Genes in this geographical area, actively committed to improving the quality of life of this group and supporting political actions.
路 Social Collaboration: Rotary Club Murcia Norte, collaborator and event organizer for D'Genes entity.
路 Individual / Family courage: Family Campos Zapata, for their effort and fight like family and members of D'Genes and Coordinator of D'Genes in the Murcia area.
For your interest in publicizing the reality of rare diseases.
路 Pharmaceutical Industry: Alexion Pharmaceuticals.
For their support in the main training activity of the association sponsoring the National Congress for Rare Diseases held each year in Totana and enabling this consolidated event reaches more than 450 people in each edition.
Half a communication: Tele Alhama / Tele Totana, for their unconditional support in the dissemination of activities and events D'Genes, and for allowing its diffusion reaches beyond the borders of the Region of Murcia, allowing among others, transmission live and delayed the VII National Congress for Rare Diseases in 2014.
路 Special Award D'Genes: Naca Eulalia Perez de Tudela Canovas.
Founder of the Association D'Genes and president of that organization since its inception in 2008 until March 2014. His strength and example has inspired the struggle of this association, which is enormously grateful for their work Member.
From D'Genes want to convey their sincere congratulations to all the winners and thank the selfless work done in support of rare diseases.
