The Association of Rare Diseases is celebrating as it turns ten.
To celebrate this event, today, Thursday, January 25, has organized an afternoon of fun in the Plaza de la Balsa Vieja de Totana.
Thus, in this central space of the urban helmet totanero, various activities have been prepared from 17:30 hours, among which we must highlight inflatables, a balloon release and the presence of solidarity dolls of well-known animation characters.
Also, D'Genes representatives will meet to celebrate the first decade of existence of this association, which in these ten years of life has worked to improve the quality of life of people who coexist with rare diseases and especially also by give visibility to the reality of this group.
D'Genes wants to thank the collaboration of the City of Totana and Animunis animation company so that this afternoon of celebration can be a reality and all neighbors who wish to come and celebrate this anniversary with the association are encouraged.
We also want to thank the collaboration of Peña Barcelonista de Totana and Juan Manuel Martínez Casanova, who will make available the music equipment to set the mood for the evening.
The Association of Rare Diseases D'Genes was born, under the presidency of Naca Eulalia Perez de Tudela, on January 25, 2008, being declared a Public Utility Entity in June 2012. In 2013 the entity was organizer and founder of the Latin American Alliance of Rare Diseases, ALIBER, hosting the First Ibero-American Meeting.
In addition, organizes each year the International Congress of Rare Diseases, which brings together hundreds of people between affected by rare diseases and family, representatives of the Administration and professionals from areas such as health, social work or education.
